What is ME/CFS?

... Complex multisystemic neuroimmune disease with multiple symptoms associated with the following dysfunctions.

Diseases similar to ME / CFS have been described for at least 200 years (Lorusso et al. 2009, Shorter 1993). For these reports and history timeline, please refer to Wikipedia.

Since 1969, ME has been classified as a neurological disease by the World Health Organization (International Disease Classification) (ICD Code: 10 G 93.3).

ME / CFS is a mild to severe range and can cause severe damage to affected people. For young people such as society and schools, the lives of higher education may be seriously affected. Many people in their working age can not keep working because of their illness. Social life and family life are severely restricted, sometimes even very nervous. Many people lose contact with a sickly or unsupported family member. For those with severe symptoms, they may be living in a house or bed for several months or years.

ME is one of the first labels of this disease (Shorter, 1993, Lindan, 1956). However, there are several names. In addition to chronic fatigue syndrome (CFS), this disease is also known as post viral fatigue syndrome (PVFS - the early term which is largely abandoned now), chronic fatigue immunodeficiency syndrome. (CFIDS - rare term), also recently known as a review of the American Institute of Medicine (Report Summary, Report Clinician's Guide, Full Report) presents a new name - whole body exercise intolerance (SEID -) In one aspect, it was "backward" death - it was criticized by some patients, Jason et al. , 2015)

ME / CFS US Centers for Disease Control and Prevention (CDC) (CDC uses the case definition of 1994 or diagnostic criteria of Fukuda (Fukuda et al., 1994), replaced by the Canadian consensus standard in 2003 (Carruthers), followed by the 2011 International Consensus Standard (Carruthers et al., 2011))

Jason, L. A. "Consider the overall development of intolerance of medical systems" Pol Arch Med Wewn, 2015, 125 (7-8): 576-581

Carruthers, B. M. , Et al. "Muscle pain encephalomyelitis: international consensus standard" J J Intern Med, 2011, 270 (4): 327-338

Carruthers, B. M. et al. "Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: Definition of Clinical Working Cases, Diagnostic and Treatment Options." Journal of Chronic Fatigue Syndrome, 2003, 11 (1): 7-36

Fukuda, K. "Chronic fatigue syndrome: a comprehensive approach to its definition and research. International Chronic Fatigue Syndrome Research Group" Ann Intern Med, 1994, 121 (12): 953-959

Short, E. "Chronic fatigue seen from a historical point of view" Ciba Found Symp, 1993, 173: 6-16; Discussion 16-22

Muscle pain encephalomyelitis / chronic fatigue syndrome (ME / CFS) is a serious long-term illness that affects many body systems. People who have ME / CFS often do not perform daily activities. From time to time ME / CFS may restrict them to sleep. ME / CFS people have serious fatigue and sleep problems. ME / CFS may get worse if sick people try to do what they want to do or do. This condition is called postoperative discomfort (PEM). Other symptoms include thinking, concentration, pain and dizziness.

Jennifer Brea began at the beginning of the award-winning documentary "The Riot" and began life-changing neuroimmune disease ME / CFS or myalgic encephalomyelitis / chronic fatigue syndrome. ME / CFS is a spectral disease, its victims range from mildly suffering to completely bedridden, despite its overwhelming evidence, the public and the medical community are incredible It has become. This is one of the list of diagnoses the doctor gave me for years. Still, since becoming a member of most families in early 2016, Jennifer's words feel they may be mine.

VF: ME / CFS statistics are shocking! Approximately 2 million Canadians (3% of our population) suffer from one or more ME / CFS, fibromyalgia, or multidrug resistance. Estimated 17 million people worldwide are affected by ME / CFS. Most of us know people with this situation. ME / CFS is an equal opportunity illness - people of all ages, gender, race, socio-economic status can be affected. VF: Writing and writing this book is "summoning". At first, when I got sick on bed, most of my thoughts were in my place, my pen and paper were nearby. When they came, I wrote them down and interpreted the little meaning of the next day. When I started writing, I was sick for 20 years and my function was between 30% and 50%. I am very uncomfortable, but I have to obey this inspiration.