Living With Spina Bifida: A Historical Perspective

On 11th October 1983, "Baby Jane Doe" was born in Port Jefferson, New York, diagnosed with hydrocephalus and spinal cord meningeal herpes, the most common and severe form of spina bifida. The doctor advised his parents to die without surgery. Through surgery, she lives 2 to 20 years with squats, bedridden, incontinence, and severe "bluntness". Based on this information, parents refused to receive treatment. However, Xiao Zhenni survived and became a self-contained prophecy; she is not expected to undergo surgery, as she is expected to suffer damage of the brain, she may be avoided by early aggressive treatment It causes harmful infection. Subsequent Baby Jane Doe lawsuits and coverage focused on the issue of 'quality of life'. (The story of Baby Jane Doe is spoken in many places, see for example references 1 and 2)

Prior to 1960, the survival rate of all forms of spina bifida was 10% to 12%. 3 Surgeons usually postponge to 2 years, thinking that only the longest survivors will survive for a long time. Prior to antibiotics, most infants with spinal meningocele died of meningitis. Since hydrocephalus also causes death, the development of shunting in the late 1950s revolutionized the treatment of spinal meningocele 6 Survivors of meningitis and hydrocephalus face kidney complications I will. In the 1960s urinary tract surgery was developed to protect renal function and provide social control to children.

By the mid-1960's, improved treatment improved the survival rate and the level of disability decreased. 1967, W. J. W. Pediatric surgeons at Sheffield Children's Hospital, Sharrard, Robert Zachary and John Lorber reviewed 526 children born between 1955 and 1962 who treated spinal meningeal hernia. They concluded that there is no place to select patients for conservative treatment rather than surgery.

37132 Address information from Dr. Lisa J. Pruitt of Tennessee State University Campus Column 23 of Murfreesboro, Tennessee. E-mail: lisa.pruitt {at} mtsu.edu

The spina bifida is one of the most common severe birth defects, and in the United States there is one birth per 1,000 people. The proportion of Hispanic and European spina bifida is higher than that of German Jews, Asians and African Americans. Mothers with specific health problems (such as diabetes and epilepsy (including specific anticonvulsants)) also show higher rates, and the couple ratio of at least one spina bifida patient and two spina bifid children Is much higher

One of the factors involved in spina bifida is heredity. If the previous pregnancy is affected by the spina bifida, the risk of recurrence will be higher. There is a greater risk if you have a family history of spina bifida. "All women who are pregnant are at risk of developing spina bifida and 95% of neural tube defects occur in women who do not have a pregnancy affecting pregnancy." There are various treatment options , You can prevent. "By measuring 0.4 mg folic acid daily before pregnancy, 50 to 75% of spina bifida and other neural tube defects are prevented. Folic acid is a common water-soluble vitamin B essential for its function The pregnancy and fetal growth, the body's demand for this vitamin will increase

The Illinois Vertebral Fracture Association is working on improving the quality of life for children, adults and spina bifida patients. The spina bifida is the result of abnormal closure of the pregnant spine. ISBA is working on: Outreach, promote skill development and independence through education and advocacy, improve family resilience and access to resources, and provide targeted financial aid ISBA is a 501 (c) (3) non-profit organization established by parents group in 1969. We work with state-wide families, service providers, volunteers, and funders. ISBA provides services to more than 900 families and has achieved collaboration with the Bisection Spinal Clinic at a local hospital. Our plan includes: social workers who can make home visits, independence of camps operated by YMCA, GoBabyGo - electric cars for infants to improve their agility, meetings, Resource introduction, scholarship, equipment fund, research award