Family Council Discussion Papers

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Discussion paper was discussed at the February 2007 meeting. This is one of a series of papers designed to help the Council decide the choice of organ procurement, transplantation and distribution policies. Each paper in this series is intended to facilitate the discussion of the Board of Directors and does not represent the official views of the Board of Directors or the US Government. As of January 18, 2007, there were 94,664 Americans registered on the OPTN port list. It is the largest group of patients who need kidney, accounting for about two-thirds of the list. According to most predictions, that number can increase significantly in the coming decades. As Dr. Neil Powe explained to the Board at the June 2006 meeting, only the famous "Iceberg" of chronic kidney disease was seen. Renal failure patients are only a small portion of patients with chronic kidney disease. . Kidney disease

The view expressed in this discussion paper is the author's view, to help convey and stimulate the discussion. The discussion paper has not been reviewed by the Institute of Medicine and is not a report of the Institute of Medicine or National Research Council. Marketing experts, decision makers, patient advocates, and clinicians have made a series of guidelines and basic expectations to support communication between patients and physicians. This work was undertaken under the auspices of the Institute of Medical Research (IOM) on Best Practice and Evidence Communications Innovation and the Science-driven Health-Around Table.