Exciting Times

These are exciting insurance companies and health insurance companies, tightening our patients more tightly, hindering and building new, sometimes even subtle, caregiving barriers. However, IDF continues to increase its supportive activity in the community of primary immunodeficiency disease (PIDD) to overcome these obstacles.

A new IDF promotion section on our website - one of your efforts is where you are now. This site was redesigned to help raise awareness of the problems faced by major immunodeficiency communities. This is where these issues are discussed with other members of the IDF community and stories about these issues. Perhaps most importantly, it is a place where resources and tools are effective supporters and promised to take action.

You will notice that attention stories are regularly updated to understand the main issues facing the PIDD community. In addition, hot issues highlight other concerns. This column 'policy issues' will be more editorial and sometimes provocative; please provide a political background and explanation on the defense issues and activities of the IDF. Of course, I am looking forward to your comments and ideas.

One highlight of this site is the IDF promotion channel. Here you can make a real personal contribution to the channel. I hope that you will participate by telling stories about specific advocacy issues. For example, Ginny Job in Kansas has been receiving IVIG for many years, but if you are 65 years old and you qualify for Medicare, problems will arise because you will not be able to infuse your family. The story of Ginny is as follows

If you dismiss IVIG health insurance claims, we want your story. If you refuse treatment for medical insurance, we want your story. Your story is very important, we think everyone can hear your message!

The more stories, the better. Not everyone is displayed on the page - there is not enough space. Video must be limited within 3 minutes

So take out your camera and tell everyone the story of your advocacy. For information on how to send videos, please click here.

Craig Robertson: This is an exciting time to enter the industry. I think the true convergence of patient treatment results for the first time among pharmaceutical companies, insurance companies, patient advocacy groups, integrated delivery networks, and institutions. This is a very exciting time as we have opportunities to work in all areas of these industries. Jim Cleffi: According to Craig's view, I think the most interesting thing is that the roles and impacts in the market have changed significantly. We think that we are beginning to see the payer act like a provider, provider . Like payer, now manufacturers Our life science customers are acting like service providers. This is unusual, now it's a very exciting point and time

The first public version of the Offcourse platform will be available in January. We have an exciting time as a team, but there is time to share this excitement with you. We are here to explain why we are so excited about the platform here and why you are expecting to do the same. Off course was established to make everyone access education. Therefore, we do not only mean formal education. We are talking about alternative learning environments to support people who do not have the opportunity to receive formal education. We hope to take this opportunity to learn from people all over the world. Does anyone want to learn coding methods and something else? The Internet may become an important alternative learning environment. If we live in an era always on, this is a potential learning environment.